With Some Grace

Everyday Experiences, Lifelong Learnings

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The Bravest Little Pocket Rocket I Know

January 12, 2011 By: mamagrace713 Comments

Without a doubt, it’s been a devastating start to the new year:  Freaky flash floods leave Queenslanders losing homes and even lives; Innocent people, including a 9 year old girl have been killed by random gun shootings in Tuscon, Arizona…I don’t need to continue.

It can be a cruel, senseless world we live in.  In difficult moments, we look for some light. There is the search for hope.  We embrace any inkling of positive news.

Let me introduce you to a courageous youngster who I like to call “Little Miss E”.  This little girl was born 3 days after our boys and I randomly met her mum, Mama Tim Tam – in of all places – the Mothers Only Breast Feeding Room.  Naturally, during their time in the NICU, parents of premmie babies would constantly meet and share their stories.  (Not to mention the complaints of sleep deprivation).  But Mama Tim Tam and I have established a bond beyond the doors of the hospital.  Along with her adorable daughter, we are almost family.

This is their story of undying hope, unconditional love, loss and unwavering strength.  I am deeply honoured that Mama Tim Tam has given me her blessing and her permission to share their journey with you.

Little Miss E was born 13 and a half weeks premature.  As the surviving identical twin, she arrived into the world weighing a mere 720 grams (That’s less than three slabs of butter) and only 32 centimetres long (Around the size of an A4 piece of paper).

From the very beginning, this little fragile baby was given the daunting task to learn how to survive. Immediately after birth, the doctor’s discovered she was not breathing and had a heart rate of only 20 beats per minute.  Little Miss E was attached to a ventilator immediately.  She started life being completely dependent on breathing assistance equipment.

First photo

So began her uphill battle to live – fighting against the odds.

Little Miss E spent 3 and a half months in the NICU.  (Our boys were only in the NICU for a smidgen of that time – 16 days).  When I think of this vast contrast, I am in complete awe and admiration for a teeny weeny infant who obviously has so much  inner-strength and determination.  (Funnily, she doesn’t even know it yet…)

Each day during those long months, both mother and daughter would face yet a new challenge.  Another hurdle to get out of the danger zone.

Here are some of the amazing facts and milestones:

  • After giving birth, Mama Tim Tam had to wait five days until she was able to have her first skin-to-skin cuddle with her baby.

    Some skin-to-skin-time with Mama, who is holding a puffer...just in case someone needed help with breathing...

  • On Day 19, Little Miss E had her first trial run of breathing by herself – she made it to an hour before having the breathing assistance equipment reattached to her.

    Heavily relying on breathing assistance equipment

  • Day 25 – a  joyous day – Little Miss E made it into the 1 kilo club !
  • “Let the Mountain come to Mohammed.”  After expressing her breast milk for 7 weeks, Mama Tim Tam was finally able to directly breast feed her little girl.
  • After 13 weeks and 5 days – her actual expected due date – Little Miss E was finally able to go home.  Despite all the drips, ultrasounds, canulas, blood tests, doses of morphine, brain scans, x-rays, transfusions, daily heel pricks and other painful medical pokes and prods, this little tyke was – amazingly – left with few scars.

    Finally out the door...

Alongside the above major achievements, Mama Tim Tam shared with me some of the special moments of the early days in the NICU.  Moments that kept the light at the end of the tunnel a little easier to see :

  • One particular midwife managed to get smiles, even sub-conciously, during every visit.
  • Mum’s voice or touch would slow her heart rate, creating a sense of calm and comfort.

    Day 13: With best friend, Zebra...who was bigger than her

  • The soft toy zebra that sat in Little Miss E’s crib was initially bigger than her.  To this day, it still has the little drops of blood stains from the daily heel pricks that most premature babies are succumbed to.

    "Finally...bigger than my buddy"

When the days get a little tough to bear and general moodiness takes its toll, I think of this brave little tot.  She is my source of inspiration.  When I get frustrated about how I can’t seem to shake off that stubborn last 5 (ahem, maybe 10 ?) kilos of post baby/ies fat or at a loss as to how I’m going to muster that self-confidence to chase my dreams and aspirations to be a professional writer, I think of my precious pocket rocket.

Little Miss E’s story of bravery and and her insurmountable will to cling onto life has taught me the endless possibilities of what we can achieve.

Fun and giggles in her favourite toy car

She came into this world with so much against her.  She will never know her twin.  Yet, each time she visits us, her infectious smile lights up our lounge room.  Little Miss E is a shining beacon of positive light.  For me.  For my family.  For many of us.

Gearing up for her first Christmas

In Loving Memory:

This blog post is dedicated to Little Miss Angel A who sadly passed away in utero at 20 weeks gestation.  We love you and think of you always.  We mourn over your lost chance of being an identical twin sister, a daughter, a grand-daughter, a niece and our friend.

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Christmas Holiday Ramblings

January 3, 2011 By: mamagrace717 Comments

Talk about ending the year with a bang !  Yet, if you think I have tales of fabulous NYE parties filled with champagne and canapés, you are sorely mistaken, my friend.

Having to sacrifice my front seat to an (almost) industrial-sized air cooler, awkwardly-shaped giant breast feeding pillow, Baby Bjorns and a huge plastic tub filled with baby bottles and feeding utensils, I’m squashed in the back seat of our family car, taking position next to my (finally) sleeping boys as I type into my iPad.  We’re driving back home to Sydney after a 10 day whirlwind tour of visiting family – both Hubby’s and mine.  As far as schedules go, this year was no different from any other:  Christmas with Hubby’s family then ringing in the New Year with mine at the “Big Roundabout” (also known as Canberra).  Nothing too riveting, but always guaranteed of little or no travel dramas.

Backseat View: Hubby befriending the air-cooler and giant breastfeeding pillow

This year of course though, there is a slight catch – there are two extra munchkins joining in the fun ride.  Two little people demanding a ton of attention and requiring a truck (or in our case, Falcon sedan) load of maintenance.  Who would’ve thought that just two teeny tiny humans could create such brouhaha ?

Are we there yet ? Are we there yet ?: Heading for the "Big Roundabout"

I’m going to sound like a broken record, but dear people, I am friggin’ exhausted !!!  I’m also feeling jipped off.  Like an irate shopper who missed out on the last pair of Nine West end of year discounted gladiator sandals, my gripe is: “What the heck happened to my Christmas holiday ???”

A combination of sticky hot summer weather, unfamiliar surroundings and a myriad of Christmas commotion have all contributed to the disorder, discomfort and inconveniences of our first family Christmas holiday.  Joy of joys.

Oh, I guess it didn’t help that Little N had a fever of 39 degrees after Christmas, prompting 2 trips to the doctor.  Then, of course, it’s inevitable when one twin gets sick, the other one soon surely follows.  Little K, making his early start to the calls of sibling rivalry, topped his older brother’s temperature one night at 39.5 degrees.  Hence, there was a week of restless, sleepless nights, mastering the tricky juggling act of settling two unhappy, wailing babies whilst administering them with doses of children’s panadol and anti-biotics.  Did I tell you how exhausted I am ?

My dear readers, you will be happy to know there were some positives. One especially, was the life-saving-breaking-the-mundane local swimming pool.  The smiles on the boys’ faces as they splashed and whirled around in the baby pool was priceless.  It was also at this very pool where we introduced the boys to two evils invented by this sinful world: chocolate and ice cream.

"Hmmm...what is this ?": Little N's introduction to chocolate and ice cream

Little K's first ice cream moustache

 

 

 

 

 

 

 

 

 

 

So, there you have it: Summer colds, unbearable heat, mixed in with some fun in the sun.  Just your typical Australian Christmas summer holiday…

At last, the M5 turn off is in view.  Homeward bound.  Sweet homeward bound.

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New Year’s Resolutions: Make Them ? Or Break Them ?

December 29, 2010 By: mamagrace71comment

It’s started.  The television is constantly hammering us with advertisements for “quick weight loss deals” and “exercise offers”.  Suddenly, we are all too aware that the new year is fast approaching and the coinciding message is loud and clear:  Start the year by committing to making some life-changes.  Get a head-start for self-improvement goals.  Make that list of New Year’s resolutions.

So, last night, I thought I would give it a whirl and started my schedule for 2011. After giving it some contemplation, I managed to include the usual “house-cleaning” items.  You know the kind:  “The must do less/gotta do more” type of agendas.

Here are some examples:

  • Eat less crap unhealthy foods/Lose more weight
  • Spend less time watching all the trashy shows on Channel 9 and 10 TV/ Read more books
  • Do more exercise/Spend less time watching Modern Family episodes on DVD while eating a bag of Salt and Vinegar chips being a couch potato

I read through my list and although I wasn’t completely satisfied with it, I figured it was just a “draft” and had plans to complete it the next day.

Putting the list aside, I just wanted to retire to my bed, anyway.  Having spent the past 3 days at Nulla Nanna‘s place for Christmas, the boys had been unsettled throughout the evenings.  Between them, they had woken up at least a dozen times each night.  Thus, leaving both Hubby and I completely exhausted.

Thinking that they just needed to be back in the comfort of their own cots, I was relishing in the hope that we would all finally get a good night’s sleep.  I couldn’t have been any more wrong.

Within an hour, we woke up to Little N’s restless cry.  He had a fever.  As I tried to comfort the little munchkin in my arms, feeling his warm little body in the dark and facing another sleepless night, I started thinking about my little list again.

If resolutions were about setting up and ticking off year-long goals or to start and successfully achieve projects to better oneself;  Motherhood was surely the other extreme.

Since becoming a mother, tasks were not only never-ending, they were never fully- completed.  I could never seem to reach that box and give it a big tick of satisfied accomplishment.

As an occupation, motherhood is like painting the Sydney Harbour Bridge from one end to the other.  It would take forever to paint the entire structure. When you finally get to the end of the bridge, the paint would have worn out and you have to start all over again.  I am reminded of this metaphor each time I look at the bottomless laundry basket or the kitchen sink that is constantly full of dirty dishes and baby bottles.  Don’t even get me started on the smelly, always-full-to the-brim nappy bin.

I know it’s not just me that has these feelings of “incompleteness”.  When discussing what motherhood meant to her, my oldest friend from high school asked me, “You know how at the end of a working day, you finish your “Things-To-Do” list and you’ve accomplished everything you had set out to do ?  And there’s a true sense of satisfaction when you leave the office because your desk is tidy and clear of paperwork ?”

“Yes,” I replied.

“Well, at home with the kids, I never feel that way,” she shrugged.

I rest my case.

I wish you all lots of love, laughter and all the big ticks for 2011.

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The Highs and Lows of 2010

December 27, 2010 By: mamagrace713 Comments

With a belly full of Christmas lunch (and dinner), ample time wasted spent watching the cricket (Australia, what an embarrassment !) and much lazing about pondering on the couch…it was time to head back to the computer and recap the year gone past.

To sum it up in five words: What.A.Year.It’s.Been.

So, here it is – 2010: the good, the bad and the not-so-pretty.

Lousy Loopy Lows:

  • Having Little N and K in the NICU for 16 days
  • Having nipple thrush for almost 2 months (Oh.My.God…I have never felt such toe-curling pain like it !!!  Another story, another post…)
  • “Someone” (ahem) forgot my birthday.  Not just any ordinary birthday, mind you, but the first birthday as his wife and mother to his twin sons (Oops, did I give it away ???).  Such (almost) unforgivable forgetfulness left me completely livid (to say the least) for three days.  (Yet another story, another post…)
  • Having done the sums, it would appear that we would have changed a total of 5, 392 stinky poo nappies
  • Do I need to say it ?  Yes, I do:  The sleeeeeep deprivaaaaatioooooooon !!!!!!!

    Me ? Tired ? What makes you think that ???

Hip Hip Hooray Highs:

  • The much-anticipated arrival of our beloved boys – Little N & K
  • Meeting and making life-long friendships with mothers of other premature babies who were in the NICU

    Friends Forever - Me and mums of other premmie pumpkins

  • Being possessed by a motivation (or some would have said “insane”) streak, caused me to participate in the 14 km City2Surf Fun Run, then a month later, the 8km Bridge Run.  The crazed running phase continued as 2 months after that, I entered the 10 km Sydney Olympic Park Fun Run  (A friend on Facebook made a very good point:  “Why are they called ‘Fun Runs’ ?  Where’s the FUN ???”)

    My devoted Cheering Squad at one of the Fun Runs

  • Aunty Sari visiting us from over yonder Honkers
  • The amazing abundance of love shared and demonstrated by N and K’s grandparents – both Indonesian and Australian.
  • Officially becoming a publishable (amateur) writer…with an alias pen name, no less (Okay, so it was only one 40o word newspaper contribution but I’m going to soak it up… for all it’s worth…).
  • Starting up this blog

So, for the first time, in a long time, my year of highlights do not include exotic overseas trips or any grand, extravagant purchases.  I’m cool with that.  On the flip side, it was duly noted that, none of the listed lows entailed the usual worries and woes of the past – career, finances and yearning of material possessions.

Bigger house and car ?  I’ll be honest.  It would be nice.  I wouldn’t say no if someone was offering.  With our expanding family, God knows we need both.  But these past 12 months hasn’t been about anything tangible, shiny or lavish.  Instead, 2010 has seen a turning point of a different kind.  For me, the meaning and understanding of the year that was, can be found in – of all places – a Sheryl Crow song:

“It’s not having what you want, it’s wanting what you’ve got”

Sheryl baby, you nailed it.

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Premmie Pumpkins: Little Miracles

December 22, 2010 By: mamagrace7110 Comments

42,000.  That’s the annual number of premature and sick newborn babies who need to be looked after in either a Neonatal Intensive Care Unit (NICU) or Special Care Nursery (SCN), throughout Australia.  Within this vast figure, 2 of these babies were mine.

Last week, I went to the Miracle Babies NurtureGroup Christmas get-together.  Catching up with other mothers of premature babies and seeing how much their munchkins have grown, I was compelled to write about those early days.  We have indeed come a long way.

I won’t lie.  This post is a particularly hard one to write.  It’s an exercise of re-tracing a journey that was full of anxiety, uncertainty and yet a LOT of hope.

Day 1: Little N

Little N and Little K were born 5 weeks premature.  At around 33 weeks, it was discovered that Little N had stopped growing (ie my placenta was just about going kaput) and due to the growth discrepancy between the twins, delivery was brought forward to 35 weeks.

Aware of our deep concern of what was to lie ahead, our obstetrician introduced us to one of the leading paediatricians at the NICU prior to the scheduled delivery date. To try and help ease our minds, he took us on a tour of the unit.

Same Day: Little K

There we stepped into a completely different world: Tiny babies in humidicribs, some connected to life support systems .  Tubes attached to small bodies, surrounded by midwives and doctors busily checking and monitoring each little patient.  There are the anxious parents vigilantly standing by.

It was then that I thought about how we live in a society where we naturally believe that bigger is better.  Cars, houses, bank accounts…and I realised that this mentality also applies to newborn babies.

Our chests swell up with pride when a “bouncing baby boy” is born well over the “average” birth weight.  Yet, we tend to shy ourselves away or left without words when, for instance, a friend, an acquaintance, or a relative announces that their little one has arrived 10 weeks early and weighing in at a fragile 820 gms.

At the last ultrasound, it was predicted that Little N’s birth weight would be around 1.6 kgs.  (A pip squeek !)  During the tour of the NICU, I specifically asked the paediatrician to show me a baby of a similar weight.  When he did, things started to shape into perspective for me.

I was one of the more fortunate mothers.  I had time to mentally prepare myself . There are some parents who don’t have that luxury.  Sometimes, Mother Nature takes its own course and without warning new parents are faced with their premature newborn suddenly having to learn a basic human instinct – how to survive.

So, on the 28th of January, 2010 at 10:33am, Little N was born at 1.8 kgs (a whopping 200 gms heavier than his predicted birth weight).  2 minutes later, Little K, our little “Fatty Boom-Bah” arrived at 2.5 kgs.

Day 2

Unlike mothers of full term babies, after I was discharged from the maternity ward, I went home, leaving our precious boys at the NICU.  I really can’t express in words how emotionally wrecked I was that day.  No new mother should ever have to leave a hospital without their babies.  It’s a heart-wrenching experience.

Day 5: Some skin-to-skin with Little N

Our boys were in NICU for 16 tough and extremely long days.  Some days there was progress.  On others, we would be at a standstill.  We just stayed focused, kept sticking to the routine and taking the advice from our paediatrcian and midwives as sacred.

Day 11

Almost 11 months later, we are – thankfully –  well and truly out of the danger zone.  Sure, the boys are still soldiering their way up the percentile graph.  But as a mum of premmie pumpkins, I decided to ignore whatever the books and all the “laws of baby averages” were dictating as far as what my children’s development should be.  Bugger it.

Instead, I take the time to pause and remind myself of Little N and K’s milestones – the early interaction, breast feeding, cooing, eating solids, crawling and more recently, their absolute delight in discovering each other’s existence.

While the twins are happily playing or crawling around and chasing each other, I look at them in awe and think, “Do you realise how far you two have come ?”

Despite their shaky start in life, I’m just grateful that my beautiful boys are healthy, happy and thriving.

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The beginning…of what ???

September 29, 2010 By: mamagrace7119 Comments

Eek! The one that makes you shudder! Where you hang your head in complete embarrassment because no matter what…it’s out there and it’s permanent!

Yup, my very first blog post.  EVER.

I asked Robo Mum if I could bend the rules a little and post my second one instead but nope. She’s a tough one is that Robo Mum. First or nothing.

So here it is.  Resurfacing its ugly, terribly disjointed self.  Read at your own peril!

Joining the gals at The Lounge (hosted with Robo Mum today) because they’re so awesome 🙂

the-lounge-logo

**********

Today has turned it out to be a rather interesting one.  All it took was one brief phone call from a major Sydney newspaper saying that they wanted to publish MY article…and ever since I’ve been sitting up straighter, standing up taller, feeling like a proud peacock.  Now it’s 10pm…my family are all tucked away in bed.  There is finally some peace and tranquility in my household and all I want to do is write.   But where to begin ?  So many thoughts that need to be somehow pigeonholed and eventually articulated on paper.  This is where the challenge begins.  Now it’s been over a year since I left the crazy corporate world (or did it leave me ?  Another story for another time).  It’s taken this time for me to find comfort and a sense of peace in my new “direction”.

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About Me…

Indonesian-born, Grace spent extensive time living and working overseas, primarily in Japan. She now resides in Sydney where she is mum to identical twin boys and wife to an avid surfer. While she has happily replaced office life with motherhood, Grace has discovered that a 10 year career in corporate sales and being fluent in 3 languages is futile when dealing with toddler tantrums and singing “The Wheels On The Bus”

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